The 'Type' that Saves Lives
How the Alumni Association and Hopkins Students from
Three Schools Joined Forces to Save Lives
"One day," says Sallie Permar, co-founder of the Type for Life
drive, "Annie Reis and I were running along--I had convinced her
to train for a marathon with me--and I mentioned to her how
surprised I was that Hopkins had no marrow registry drive."
At Davidson College, where Sallie studied as an undergraduate,
the registry drive has been an annual event run by students since
1989, the year a Davidson student was diagnosed with leukemia.
"It's a big deal at Davidson," explains Sallie, a Ph.D. student
at the School of Public
Health.
Thousands of people each year are diagnosed with leukemia and
other conditions that could be treated, and often cured, with a
marrow transplant. Unfortunately, only about 25% of patients
find a suitable donor within their own families. The other 75%
must cross their fingers and hope that they will find a match on
the international registry maintained by the NMDP, the National
Marrow Donor Program. As of Spring 2000, over 4 million
potential donors had registered their blood profiles on the
registry. While 4 million may sound like a lot, it isn't nearly
enough. Only about a third of Caucasian patients seeking
transplants are able to find a match on the registry, and the
success rate is as low as 14% among non-Caucasian groups.
"Well," Annie (Med '02) responded as they neared mile 15 of their
run, "let's do something about it!" As they checked their pulses
and did their cool-down stretches, the two friends decided then
and there to start a drive at Hopkins. They were soon joined by
their friend Jennifer Anderson, another Ph.D. student at the
School of Public Health, and Jennifer Annibale, a student at the
School of Nursing.
 |
Type for Life Organizers look on as Allen
Chen talks with one of his young patients, Richard Goodlaxson,
who was helped by a marrow transplant. The students are, from
left, Annie Reis, Jennifer Annibale, Jennifer Anderson, and
Sallie Permar. |
"We all are very interested in helping people," says the group's
finance chair, Jennifer Anderson, explaining the common
denominator. "I think this drive is such a simple way to make an
impact on someone's life. Our slogan is 'Are you the TYPE to
save a life?'"
Their first step was to speak with Allen Chen, assistant
professor of oncology and pediatrics and director of the
Pediatric Bone Marrow Transplant Program at the Johns Hopkins
Hospital. Dr. Chen, a softspoken young doctor with an obvious
passion for his work, told them how marrow donations had saved
patients' lives. As they walked through the colorfully decorated
pediatric ward, Jennifer Annibale, who had done her pediatric
rotation here the semester before, saw some familiar faces among
the 15 or so children.
Convinced that their idea for a drive was important, the students
then faced the problem of money.
It costs around $75 dollars to type a blood sample for the
registry. If their drive were as successful as they hoped, it
could become very expensive. They canvassed the three schools
for support.
Their first donation--$5,000--came from the Marrow Foundation in
Washington, D.C. Subsequent donations came from the Johns Hopkins
Alumni Association Community Service Grant Program, the Johns
Hopkins Medical and Surgical Society, the Johns Hopkins Nurses'
Alumni Association, SPH's Student Assembly, and several corporate
sponsors, including Ben & Jerry's, which offered to sponsor an
ice cream social for the school with the largest participation in
the drive. Altogether they raised $16,000.
Committee members Karen Rabenau and Virginia Wood, both graduate
students at SPH, visited student groups, handed out information
about marrow registration, and answered questions about NMDP.
They explained that being added to the registry is just a matter
a giving a small sample of blood to be typed for antigens. If
you are lucky enough to be a match for a patient--and only about
1% of people on the registry are ever called as a match--the
donation of the actual marrow is relatively simple, and your body
makes new marrow to replace what you've donated.
Sallie and Annie ran their marathon this spring, crossing the
finish line together in under five hours. They crossed the Type
for Life finish line as well, and with impressive numbers. The
drive, held April 10-13, added 540 new potential donors to the
national registry--40 more than their goal.
The organizers all are on the registry as well. When asked if
they think they might end up being a match for someone, they
smile and speak all at once, their voices overlapping, "Who
knows? I hope so! Yes!" For all the happy expectation in their
voices, they could be talking about winning the lottery, or
finishing a marathon, or saving a life.
Nominations Due July 1 For Next Alumni Awards
The Alumni Association has two nomination periods for alumni
awards, with deadlines July 1 and December 1. There are three
awards (see Alumni Association Awards:
Summer 1999 and Winter 2000):
The Woodrow Wilson Award for Distinguished
Government Service,
The Heritage Award for outstanding service to
Johns Hopkins, and
The Distinguished Alumnus Award honoring
personal accomplishments, professional achievements,
or humanitarian service.
To nominate someone for any of these awards, please send a
summary of specific reasons why the nominee deserves the award.
(Please limit the length of the summary to one or two typed pages
and do not send CVs.)
Send the nomination--along with your own name, address,
affiliation, and phone number--to the JHU Alumni Awards
Nominations, 3211 North Charles Street, Baltimore, Maryland
21218; fax: 410-516-6858; e-mail:
rebeccab@jhu.edu.
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JUNE 2000 TABLE OF CONTENTS.