Johns Hopkins Magazine -- June 1998
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By Melissa Hendricks


Here are just a few of the larger organizations that offer support or information on craniofacial conditions.

The Center for Craniofacial Development and Disorders--
omie.med.jhmi.edu/craniofacial/--is based at Johns Hopkins. The Internet site is under development but should have some content by June 14. It will provide information for patients, clinicians, and researchers on craniofacial diseases, guidelines on diagnosis and treatment, and new research findings.

The Children's Craniofacial Association-- www.masterlink.com/children/. This Dallas-based group strives to increase the public's awareness of disfiguring conditions, and does advocacy work. The association's toll-free line for physician referral and emotional support is 1-800-535-3643.

About Face-- www.interlog.com/~abtface/. Support groups for people with facial differences. Based in Toronto, About Face now has chapters around the world. The group provides literature and a newsletter, and its Web site has a link to a thorough list of craniofacial resources. 800-665-FACE.

The American Cleft Palate-Craniofacial Association-- www.cleft.com/. A non-profit organization for professionals involved in research and treatment of craniofacial conditions. The group also runs Cleft Line, a hotline offering support and referrals to parents of children with cleft lip or palate (800-242-5333).

Wide Smiles-- www.widesmiles.org/. Offers emotional support, information, referrals, and networking opportunities for families that have a member with cleft lip and palate. Its Web site includes a link to a chat line and "venting page."


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