Johns Hopkins Magazine -- September 2000
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SEPTEMBER 2000
CONTENTS
RETURN TO INTO THE HANDS OF BABES
RELATED SITES
AUTHOR'S NOTE
H E A L T H    A N D    M E D I C I N E

Into the Hands of Babes
Related Sites

For a basic guide on androgen insensitivity syndrome, congenital adrenal hyperplasia, and other intersex conditions, see http://www.med.jhu.edu/pedendo/intersex/index.html. The guide, produced by the Johns Hopkins Children's Center, uses layperson-friendly language.

The Intersex Society of North America (ISNA) has a website at http://www.isna.org. The group's mission is "to end shame, secrecy, and unwanted genital surgeries for people born with atypical sex anatomy." A chart comparing the model of treatment advocated by ISNA to the conventional model is posted at http://www.isna.org/compare.html.

http://www.medhelp.org/www/ais/ is the homepage for the Androgen Insensitivity Syndrome Support Group, a support group for patietns with AIS and their parents. Offers medical information, patients' personal stories, and a few clinician recommendations, weighted toward doctors in the United Kingdom where the site was begun.

A Hopkins study involving women with androgen insensitivity syndrome reveals that androgens may not be vital to a woman's sex drive. A press release describing the study appears at http://hopkins.med.jhu.edu/press/2000/
AUGUST/000809.HTM.

"The True Story of John/Joan," a story by John Colapinto in Rolling Stone ignited a debate over the treatment of children with urogenital conditions and injuries. See http://www.pfc.org.uk/news/1998/johnjoan.htm.

The physicians' group NATFI (the North American Task Force on Intersexuality) is reviewing current practices of gender assignment and genital surgey for patients with ambiguous genitalia. See http://www.natfi.org/.

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